The 20 Best Hennekam Syndrome Doctors Near Me in Grand Rapids, MI

Find the Top Hennekam Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Hennekam Syndrome near Grand Rapids, MI. Of these, 13 are Experienced and 2 are Advanced.

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15 providers found
    Linda Z. Rossetti
    Advanced in Hennekam Syndrome
    Pediatrics | Medical Genetics
    Advanced in Hennekam Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Spanish

    Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

    Daniel Fain
    Advanced in Hennekam Syndrome
    Pediatric Neurology
    Advanced in Hennekam Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Fain has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is currently accepting new patients.

    Jessica R. Priestley
    Experienced in Hennekam Syndrome
    Pediatrics | Medical Genetics
    Experienced in Hennekam Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency.

    Learn about our expert tiers
    Steven Deroos
    Experienced in Hennekam Syndrome
    Pediatric Neurology
    Experienced in Hennekam Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

    Jena M. Krueger
    Experienced in Hennekam Syndrome
    Pediatric Neurology
    Experienced in Hennekam Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jena Krueger is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Krueger has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2. Dr. Krueger is currently accepting new patients.

    Jason Umfleet
    Experienced in Hennekam Syndrome
    Pediatric Neurology
    Experienced in Hennekam Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jason Umfleet is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Umfleet has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Seizures. Dr. Umfleet is currently accepting new patients.

    Robin J. Cook
    Experienced in Hennekam Syndrome
    Pediatric Neurology
    Experienced in Hennekam Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is currently accepting new patients.

    David S. Moon
    Experienced in Hennekam Syndrome
    Pediatric Neurology
    Experienced in Hennekam Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    David Moon is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Moon has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Tourette Syndrome, Transient Tic Disorder, Cerebral Palsy, and Focal Dystonia. Dr. Moon is currently accepting new patients.

    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Helen Devos Children's Hospital Congenital Heart Center Cvts-Grand Rapids

    25 Michigan St NE Ste 4200, 
    Grand Rapids,, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Linda Pauliks is a Cardiologist in Grand Rapids,, Michigan. Dr. Pauliks is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Pulmonary Vein Stenosis, Idiopathic Dilatation of the Pulmonary Artery, Bicuspid Aortic Valve, and Double Discordia.

    Julie J. Sommerfield
    Experienced in Hennekam Syndrome
    Pediatric Cardiology
    Experienced in Hennekam Syndrome
    Pediatric Cardiology

    Helen DeVos Children's Hospital Congenital Heart Center

    25 Michigan Street Northeast, Suite 4200, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    23+ years
    Languages Spoken:
    English

    Julie Sommerfield is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sommerfield has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Patent Ductus Arteriosus, Cor Triatriatum, Ventricular Septal Defects, and Coronary Artery Fistula.

    James L. Loker
    Experienced in Hennekam Syndrome
    Pediatric Cardiology
    Experienced in Hennekam Syndrome
    Pediatric Cardiology

    Helen DeVos Children's Hospital Congenital Heart Center

    25 Michigan Street Northeast, Suite 4200, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English

    James Loker is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Loker has been practicing medicine for over 40 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Pulmonary Vein Stenosis, and Idiopathic Dilatation of the Pulmonary Artery.

    Daniel C. Dapprich
    Experienced in Hennekam Syndrome
    Experienced in Hennekam Syndrome

    Dermatology Associates Of West Michigan PC

    1740 East Paris Avenue Southeast, 
    Grand Rapids, MI 
     (7.8 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Dapprich is a Dermatologist in Grand Rapids, Michigan. Dr. Dapprich has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Neurocutaneous Melanosis, Actinic Keratosis, and Giant Congenital Melanocytic Nevus. Dr. Dapprich is currently accepting new patients.

    Experienced in Hennekam Syndrome
    Medical Genetics
    Experienced in Hennekam Syndrome
    Medical Genetics

    Helen Devos Children's Hospital Medical Genetics

    25 Michigan St NE Ste 2000, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Timothy Moss is a Medical Genetics provider in Grand Rapids, Michigan. Dr. Moss is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Simpson-Golabi-Behmel Syndrome, Megalencephaly-Capillary Malformation Syndrome, Beckwith-Wiedemann Syndrome, and Perlman Syndrome.

    Experienced in Hennekam Syndrome
    Internal Medicine
    Experienced in Hennekam Syndrome
    Internal Medicine

    Age MGMT. Of West Michigan PC

    1959 East Paris Ave SE, 
    Grand Rapids, MI 
     (5.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Shahnaz Ali is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Ali is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. Her top areas of expertise are Menopause, Vertigo, Hypothyroidism, and Obesity in Children.

    Experienced in Hennekam Syndrome
    Internal Medicine
    Experienced in Hennekam Syndrome
    Internal Medicine

    Office

    655 Kenmoor Ave SE Ste 200, 
    Grand Rapids, MI 
     (7.8 miles away)
    Languages Spoken:
    English

    Michael App is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. App is rated as an Experienced provider by MediFind in the treatment of Hennekam Syndrome. His top areas of expertise are Generalized Anxiety Disorder (GAD), Obesity in Children, Seasonal Affective Disorder (SAD), and Apraxia.

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    Last Updated: 04/28/2026

    What is the definition of Hennekam Syndrome?

    Hennekam syndrome is an inherited disorder that is characterized by abnormalities of the lymphatic system, which is part of both the circulatory system and the immune system. The lymphatic system is a network of vessels that transport white blood cells (lymphocytes), nutrients, and proteins in a fluid called lymph. In people with Hennekam syndrome, the lymphatic vessels are often dilated (lymphangiectasia), which can slow down the flow of lymph and cause the vessels to leak. As a result, people with this condition experience puffiness or swelling that is caused by a buildup of fluid within certain tissues (lymphedema). The affected vessels may also break open (rupture).

    When should I see a Hennekam Syndrome doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Hennekam Syndrome doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Hennekam Syndrome doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Hennekam Syndrome doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Hennekam Syndrome doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hennekam Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Hennekam Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Hennekam Syndrome doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Hennekam Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Hennekam Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Hennekam Syndrome doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Hennekam Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Hennekam Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Hennekam Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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